As the Yo-Yo goes...

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There are so many things I would like to do. But the list continues to grow as does my confusion or fog. (Encephalopathy) This week I have been very tired and actually fell a couple of times! Seems like there is no coordination between my thoughts and the movements of my arms and legs. The hands one really hurts as it causes me to be embarrassed as I try to seen out emails and site updates. The typo's are many as are the confusing paragraphs.

The infusions give me such a boost for about four days and then I start to run down a tad. Of course if I over do it I get depleted sooner. (Which I think I did over the past week or so.) The edema is right building but I am still able to somewhat manage it. As a matter of fact, my labs have been fairly stable. I have been 2+ months out of the hospital! (Which is like a record for me.) As things change we, (the doctors and I ) make some changes here and there to get them back under control. Of course as time passes these are not going to work as well.

Still hoping and praying for a new liver. DI and I are thinking about going back to to my hometown for about a week. So many of my family members come to see me and give me strength and hope. Plus I think Di gets to relax a little since family will be there to help. Of course I really love traveling around town and showing Di where I grew up.